Aromatherapy Vigor

Question:

>That may be *your* opinion? ><vbg> >~Krissy

ROFL  And I was sure it was gonna be you!   LOL Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

Hi Rox, I am de-lurking to say that I also HATE!!! having Sacroilliitis.  The pain is a deep aching pain that is always in my back and refers to my hips (where I also have Trochanteric and Ischeal Bursitis) which I get injected every once in a while.  It also travels down my legs to my feet especially when I lay down or after having attended aqua therapy on Mondays, Wednesdays and Fridays. Every once in a while I also get a sharp pain that stops me in my tracks and takes my breath away. When I lay down my Achilles tendonitis gets worse and my heel pain has gradually gotten worse over the past few years. There are tooooo many nights when none of my pain meds even come close to taking the edge off. On those nights I would like to meet the people whom say that females get a milder version of AS than males.  Boy would I give them a piece of my mind. I was diagnosed with AS after I had an MRI done.  It showed the fusion and inflammation. As well as Codeine, Nozinan, Tylenol and Vioxx—I try— ice, heat, aromatherapy, meditation, guided imagery.  In other words when it gets bad I will try just about ANYTHING!!! I sure hope you are feeling better and are getting appropriate pain meds. ~~~Faye~~~

Response:

>No, Mamma Char.  You are not crazy.

That may be *your* opinion? <vbg> ~Krissy See my pond: http://members.aol.com/KrissyJo/ponds.html Akron, Ohio http://arthritisinsight.com Knowledge is power…support is essential.

Response:

>Between my probable Barrett’s >and her breast thing, both conditions which can be considered >pre-cancerous, what’s happening to us???  

Thats all pretty scarey.  Thank God you have one another to lean on!!! Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

>No, Mamma Char.  You are not crazy.

LOL  I havent even read the rest of the notes in this thread yet, but I would be willing to bet big money, that SOMEBODY has something smart  to say about that!!!!!  LOL Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

> Diane, > My pain, apart from the awful nighttime stuff, is also non-weightbearing. > Isn’t that interesting? Wonder why that is? > Mary

I dunno, Mary.  But, I don’t bear weight on my hands, and it hurts when I bend my fingers.  I just think that the inflammed bursa in my hip is located close to the SI joint, and possibly the inflammation just spreads.  It’s like a creeping crud. <g>   Also, by having to walk with a limp from the bursitis, I tend to throw other joints out of whack, like my SI joints.   — Di dabell at freeatlast dot com http://www.skybusiness.com/dabell2

Response:

> > It often hurts, not when I’m weight-bearing but rather when I take my weight > off my leg > LOL  Then I am not crazy.  When my SI joint is flaring, thats the way it is for > me too. > Char > "Remember, I’m pulling for ya’. >  We’re all in this together."  Red Green

No, Mamma Char.  You are not crazy. — Di dabell at freeatlast dot com http://www.skybusiness.com/dabell2

Response:

Hi Di,  I was afraid of that.  Cover all the bases because it looks like a problem today with one of you may be a problem tomorrow for the other.  That Lyme disease in your part of the country is a real curse. Please tell us about how it works out. Harv – Hide quoted text — Show quoted text -> Hi Di,  Beleive me when I say that I am not trying to start something > between you and your twin but does she have any of this?  Curious > mind kind of thing ya know. > Harv > Wow!  Funny you should ask, Harv.  And no, you’re not starting > something.  She and I seem to have different medical conditions, > for the most part.  I have my OA, bursitis, GI crap.  She has her > severe varicose veins, Lyme disease, and right now, adhesive > capsulitis.  And that’s where it gets interesting. > Remember, I said that I had ac a few years ago in my left > shoulder.  And, I think I also fairly recently mentioned that my > sister now has it.  Well, she developed it in both shoulders now. > It sucks big time.  She is seeing this wonderful orthopod.  He > was distressed when she presented with both shoulders being > affected.  He said that on shoulder, ok, but when both have it at > the same time, then you should start looking for cancer.  Oh my > God!  She asked where, and he said it could be anywhere, but she > should start with a mammogram.  So she did. > Then they asked her to come back and get a second mammo.  Sure > nuff, she has a cluster of fibrous calcifications in one breast, > which she is having removed on Aug. 3rd.  They will biopsy them, > but they are considered to be pre-cancerous at best. > I am just beside myself thinking about what she is experiencing. > And, I got really scared for myself, even though I only had it > in one shoulder.  So, tomorrow I am getting a mammogram.  I just > gotta know that I’m OK.  And, it’s been two years since my last > mammo, anyway.  This really sucks.  Between my probable Barrett’s > and her breast thing, both conditions which can be considered > pre-cancerous, what’s happening to us??? > — > Di > dabell at freeatlast dot com > http://www.skybusiness.com/dabell2

Response:

Your SI joint is roughly (and I mean roughly!) is located at about the level of your hip/on your back/about midway between your hip and your spine.  That area where some people have a dimple. Did that make any sense? Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

> It often hurts, not when I’m weight-bearing but rather when I take my weight

off my leg LOL  Then I am not crazy.  When my SI joint is flaring, thats the way it is for me too. Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

> Hi Di,  Beleive me when I say that I am not trying to start something > between you and your twin but does she have any of this?  Curious > mind kind of thing ya know. > Harv

Wow!  Funny you should ask, Harv.  And no, you’re not starting something.  She and I seem to have different medical conditions, for the most part.  I have my OA, bursitis, GI crap.  She has her severe varicose veins, Lyme disease, and right now, adhesive capsulitis.  And that’s where it gets interesting. Remember, I said that I had ac a few years ago in my left shoulder.  And, I think I also fairly recently mentioned that my sister now has it.  Well, she developed it in both shoulders now.   It sucks big time.  She is seeing this wonderful orthopod.  He was distressed when she presented with both shoulders being affected.  He said that on shoulder, ok, but when both have it at the same time, then you should start looking for cancer.  Oh my God!  She asked where, and he said it could be anywhere, but she should start with a mammogram.  So she did. Then they asked her to come back and get a second mammo.  Sure nuff, she has a cluster of fibrous calcifications in one breast, which she is having removed on Aug. 3rd.  They will biopsy them, but they are considered to be pre-cancerous at best. I am just beside myself thinking about what she is experiencing.   And, I got really scared for myself, even though I only had it in one shoulder.  So, tomorrow I am getting a mammogram.  I just gotta know that I’m OK.  And, it’s been two years since my last mammo, anyway.  This really sucks.  Between my probable Barrett’s and her breast thing, both conditions which can be considered pre-cancerous, what’s happening to us???   — Di dabell at freeatlast dot com http://www.skybusiness.com/dabell2

Response:

> Rox, I get lousy SI pain also.  Much as Mary described.  I am > going through a bout of it now, and I have it whenever I have a > bursitis flare.  So, I guess it’s associated with bursitis for > me.  It often hurts, not when I’m weight-bearing (leave that to > the bursitis ), but rather when I take my weight off my leg > and move my leg forward.  Oh, the pain in my SI joint.  Oh > God……  I hope you’re not experiencing the same, or similar. > It sucks. > — > Di

Hi Di,  Beleive me when I say that I am not trying to start something between you and your twin but does she have any of this?  Curious mind kind of thing ya know. Harv

Response:

Diane, My pain, apart from the awful nighttime stuff, is also non-weightbearing. Isn’t that interesting? Wonder why that is? Mary – Hide quoted text — Show quoted text -> Going through SI crap at the moment, I may be able to help you. > My SI pain is located in the back, on each side of the spine, sort of > right above the buttocks. If you feel back there, you can feel two bony > joints. That’s your SI. Like you said, the diamond right above the buttocks. > My pain also sometimes radiates to my outer hips (usually the right one), > but is normally confined to the SI joint. I don’t, however, know if the > hip pain is part of the SI pain, or something else. > My understanding is also that SI joint pain and problems are different > from spinal problems. I have spinal pain as well, but it’s totally > separate from the SI problems I have now. > Hope that helped! > Mary > Rox, I get lousy SI pain also.  Much as Mary described.  I am > going through a bout of it now, and I have it whenever I have a > bursitis flare.  So, I guess it’s associated with bursitis for > me.  It often hurts, not when I’m weight-bearing (leave that to > the bursitis ), but rather when I take my weight off my leg > and move my leg forward.  Oh, the pain in my SI joint.  Oh > God……  I hope you’re not experiencing the same, or similar.   > It sucks. > — > Di > dabell at freeatlast dot com > http://www.skybusiness.com/dabell2

Response:

It took years for my SI pain to be diagnosed as well. It got VERY bad this past fall, but for a few years before this, I’ve had pain there on and off, and all the drs. said it was a disc problem. Mary – Hide quoted text — Show quoted text – > your body to diagnose apparently.  I had bacacke for over 2 years, and the > doctors kept saying it was a disc problem……it was deep in my lower back, > normally on the left, and the pain went down my thigh, even right down my > leg when it was really bad.  Eventually went to see an osteopath, who was > just as fazed as the Doctor, but after 7 sessions, he just happened to press > down on my lower back, and I screamed, and he said that it was my sacroiliac > joint, and that I had sacroilitis (inflammtion of the sacroiliac joint) > into my buttock, but it seems hard to place when you get the pain…….it > may hurt when you walk, say stepping on the leg that matches the pain site, > and if you stand straight, put your legs apart, hands on hips, and rotate > your pelvis, you may well feel it really hurt then.  Ive had sacroilitis on > and off for a year now, and it is the main reason they are diagnosing me > with AS, because AS normally starts in the SI region (or symptoms show here > first).  I dont know about you, but when the SI pain is really bad, none of > my pain meds can touch it, and I just have to bear it out.  I had x-ray > results back last week, and they also show no fusion on SI joints yet, > however, you would need an MRI scan to see properly.  Have you had the > HLA-B27 blood test??  If not, ask for it, if your pos, could mean you lean > towards AS. > Take Care anyway Rox, and write anytime,  because I know what hell this can > be like!! > Darren > Question for y’all.. > Where exactly is SI joint pain located?  Can it refer pain to the hips? > Outer, inner hips?  Groin?  Lower back (the diamond right above the > buttocks?) ??? > I’m curious to know as to whether I’m experiencing this or not.  My > x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine > isn’t screwed up, tho! > Thanks for any input > — > "There are some people that if they >  don’t know, you can’t tell ‘em." > — Louis Armstrong > http://www.geocities.com/SoHo/Nook/9300

Response:

your body to diagnose apparently.  I had bacacke for over 2 years, and the doctors kept saying it was a disc problem……it was deep in my lower back, normally on the left, and the pain went down my thigh, even right down my leg when it was really bad.  Eventually went to see an osteopath, who was just as fazed as the Doctor, but after 7 sessions, he just happened to press down on my lower back, and I screamed, and he said that it was my sacroiliac joint, and that I had sacroilitis (inflammtion of the sacroiliac joint) into my buttock, but it seems hard to place when you get the pain…….it may hurt when you walk, say stepping on the leg that matches the pain site, and if you stand straight, put your legs apart, hands on hips, and rotate your pelvis, you may well feel it really hurt then.  Ive had sacroilitis on and off for a year now, and it is the main reason they are diagnosing me with AS, because AS normally starts in the SI region (or symptoms show here first).  I dont know about you, but when the SI pain is really bad, none of my pain meds can touch it, and I just have to bear it out.  I had x-ray results back last week, and they also show no fusion on SI joints yet, however, you would need an MRI scan to see properly.  Have you had the HLA-B27 blood test??  If not, ask for it, if your pos, could mean you lean towards AS. Take Care anyway Rox, and write anytime,  because I know what hell this can be like!! Darren

– Hide quoted text — Show quoted text -> Question for y’all.. > Where exactly is SI joint pain located?  Can it refer pain to the hips? > Outer, inner hips?  Groin?  Lower back (the diamond right above the > buttocks?) ??? > I’m curious to know as to whether I’m experiencing this or not.  My > x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine > isn’t screwed up, tho! > Thanks for any input > — > "There are some people that if they >  don’t know, you can’t tell ‘em." > — Louis Armstrong > http://www.geocities.com/SoHo/Nook/9300

Response:

– Hide quoted text — Show quoted text -> Going through SI crap at the moment, I may be able to help you. > My SI pain is located in the back, on each side of the spine, sort of > right above the buttocks. If you feel back there, you can feel two bony > joints. That’s your SI. Like you said, the diamond right above the buttocks. > My pain also sometimes radiates to my outer hips (usually the right one), > but is normally confined to the SI joint. I don’t, however, know if the > hip pain is part of the SI pain, or something else. > My understanding is also that SI joint pain and problems are different > from spinal problems. I have spinal pain as well, but it’s totally > separate from the SI problems I have now. > Hope that helped! > Mary

Rox, I get lousy SI pain also.  Much as Mary described.  I am going through a bout of it now, and I have it whenever I have a bursitis flare.  So, I guess it’s associated with bursitis for me.  It often hurts, not when I’m weight-bearing (leave that to the bursitis ), but rather when I take my weight off my leg and move my leg forward.  Oh, the pain in my SI joint.  Oh God……  I hope you’re not experiencing the same, or similar.   It sucks. — Di dabell at freeatlast dot com http://www.skybusiness.com/dabell2

Response:

Going through SI crap at the moment, I may be able to help you. My SI pain is located in the back, on each side of the spine, sort of right above the buttocks. If you feel back there, you can feel two bony joints. That’s your SI. Like you said, the diamond right above the buttocks. My pain also sometimes radiates to my outer hips (usually the right one), but is normally confined to the SI joint. I don’t, however, know if the hip pain is part of the SI pain, or something else. My understanding is also that SI joint pain and problems are different from spinal problems. I have spinal pain as well, but it’s totally separate from the SI problems I have now. Hope that helped! Mary – Hide quoted text — Show quoted text – > Question for y’all.. > Where exactly is SI joint pain located?  Can it refer pain to the hips? > Outer, inner hips?  Groin?  Lower back (the diamond right above the > buttocks?) ??? > I’m curious to know as to whether I’m experiencing this or not.  My > x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine > isn’t screwed up, tho! > Thanks for any input > — > "There are some people that if they >  don’t know, you can’t tell ‘em." > — Louis Armstrong > http://www.geocities.com/SoHo/Nook/9300

Response:

Hi, Rox.  The SI = sacroiliac joint.  The sacrum is immediately below your lumbar vertebrae and the ileum is the pelvic bone.  So the SI joint is the joint between them. The first time my SI joint acted up, I had severe groin pain.  Was really perplexed when hip MRI (ordered by rheumy) was normal.  A few months later I mentioned to my orthopedist that externally rotating my  left hip caused pain–he then put my left foot on right knee and compressed knee down toward the table and I hit the ceiling.  Diagnosis SI joint problem.  MRI of back also showed DDD of L1-L4, but no overt signs of sacroilitis.  You don’t have to have X-ray evidence of an SI problem–the clinical test is pretty diagnostic. I’ve since learned that it can cause pain in your back, hip, groin, thigh, etc. I’ve been referred to a pain management clinic for injections into this area, initial appt is in 1 1/2 weeks (been waiting since May).   Hope for your sake that it isn’t your SI joint.  I’ve had ongoing problems for 6 months now. — Marj To reply please remove nospam

– Hide quoted text — Show quoted text -> Question for y’all.. > Where exactly is SI joint pain located?  Can it refer pain to the hips? > Outer, inner hips?  Groin?  Lower back (the diamond right above the > buttocks?) ??? > I’m curious to know as to whether I’m experiencing this or not.  My > x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine > isn’t screwed up, tho! > Thanks for any input > — > "There are some people that if they >  don’t know, you can’t tell ‘em." > — Louis Armstrong > http://www.geocities.com/SoHo/Nook/9300

Response:

It’s in the very low back. I imagine it refers to the hips, I know mine does. Your doctor is the best person to answer this one. DeeTee – Hide quoted text — Show quoted text – > Question for y’all.. > Where exactly is SI joint pain located?  Can it refer pain to the hips? > Outer, inner hips?  Groin?  Lower back (the diamond right above the > buttocks?) ??? > I’m curious to know as to whether I’m experiencing this or not.  My > x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine > isn’t screwed up, tho! > Thanks for any input > — > "There are some people that if they >  don’t know, you can’t tell ‘em." > — Louis Armstrong > http://www.geocities.com/SoHo/Nook/9300

– http://www.erols.com/bobndiana/ http://lep694.gsfc.nasa.gov/lepedu/FrontPage.html

Response:

- Hide quoted text — Show quoted text – > Hi, Rox.  The SI = sacroiliac joint.  The sacrum is immediately below your > lumbar vertebrae and the ileum is the pelvic bone.  So the SI joint is the > joint between them. > The first time my SI joint acted up, I had severe groin pain.  Was really > perplexed when hip MRI (ordered by rheumy) was normal.  A few months later I > mentioned to my orthopedist that externally rotating my  left hip caused > pain–he then put my left foot on right knee and compressed knee down toward > the table and I hit the ceiling.  Diagnosis SI joint problem.  MRI of back > also showed DDD of L1-L4, but no overt signs of sacroilitis.  You don’t have > to have X-ray evidence of an SI problem–the clinical test is pretty > diagnostic. > I’ve since learned that it can cause pain in your back, hip, groin, thigh, > etc. I’ve been referred to a pain management clinic for injections into this > area, initial appt is in 1 1/2 weeks (been waiting since May).   Hope for > your sake that it isn’t your SI joint.  I’ve had ongoing problems for 6 > months now. > — > Marj

Hey Marj! Hmmmmm.   It doesn’t seem to hurt to rotate the leg outward.  It’s just that I am having everything that is symptomatic of AS except there’s no Si joint involvement, and that’s what I’m trying to figure out. I think my RD is considering either ReA or arthur of IBD. He could have easily checked off Scoliosis for the back problems considering what the radiologist said but he didn’t, tho.  Is it possible for AS to begin from somewhere beside the SI joint???? O well, guess we won’t know if that’s what it is until 10 years down the road anyways! Thanks for your input! — "There are some people that if they  don’t know, you can’t tell ‘em." — Louis Armstrong http://www.geocities.com/SoHo/Nook/9300

Response:

Question for y’all.. Where exactly is SI joint pain located?  Can it refer pain to the hips? Outer, inner hips?  Groin?  Lower back (the diamond right above the buttocks?) ??? I’m curious to know as to whether I’m experiencing this or not.  My x-rays showed no SI joint fusion.  Doesn’t mean the rest of my spine isn’t screwed up, tho! Thanks for any input — "There are some people that if they  don’t know, you can’t tell ‘em." — Louis Armstrong http://www.geocities.com/SoHo/Nook/9300

Response: